Neurofeedback, the hug my nervous system needed


By Juliet C Wilson “Neurofeedback is one of my favourite therapies, and I’ve seen it work wonders for Lyme Brain. I have had patients go from only sleeping two hours per night to sleeping full nights after a few sessions of neurofeedback. Others, after years of not feeling creative due to their Lyme disease, have […]


Screaming in Silent Solitude


By Andrea, Lyme patient I have been asked to write a short story about my Lyme journey for Lyme Awareness Month. I am not a writer by any means and find the task a little daunting but I knew I needed to tell my story and support the Australian Lyme community. My acceptance came with […]


An Open Letter to Parliamentary Candidates


This is an open letter to all candidates in the upcoming Federal Election (2022). By Tanya Dupagne. Today I’d like to share a story that is very important to me: Once upon a time, there were thousands of patients who became incredibly sick with similar symptoms. For an average of 10 years each, they approached […]


Dee’s Lyme journey: Was SOT the answer in the end?


By Dee Gozdecka I remember that late spring morning in 2014, when I woke up with a sharp pain on the left side of my chest. It was unusual and I could not move, but after a while it eased, and I finally got out of bed and started my day as usual. Over the […]


When the vax causes relapse


“It took me nearly 4 years to get my life back, only to lose it again in an instant” I contracted very severe neuroborreliosis after tick bites at Narrabeen in 2018, a week before my 30th birthday. I couldn’t see, stand or swallow and was having seizures every day. After 2 months of IV antibiotics, […]


Natalie’s Story: 110 ticks in one day


During her years in the service of New South Wales National Parks, Natalie Young was often bitten by ticks. For years, this was no big deal. She lived a healthy lifestyle, surfing regularly on top of her active, outdoor, dream job as Field Officer Discovery Park Ranger. She had renovated a couple of houses, was […]


Vale Daisy Long


After an arduous and soul-destroying battle with Lyme disease and related health issues, on Saturday 7 August 2021, courageous, kind and beautiful 19-year-old Daisy Long ended her life. Daisy received treatment for her illness at a Cyprus clinic several years ago, and even went on to study successfully at university. But she was left with […]


Australian toddlers denied critical healthcare in ‘political show of strength’


Children as young as 2 have been denied urgent healthcare for a bacterial infection due to the Department of Health’s political stance on what has been described as ‘the silent pandemic’. Despite thousands of Australian patients having evidence of Borrelia burgdorferi infection, commonly known as ‘Lyme Disease’, they are unable to get access to help. […]


How Leonie squeezed Lyme out of her life


Leonie Shanahan had made it. She had chased a long-held dream; and worked hard to make a name for herself in the horticulture industry. She pioneered the Edible School Gardens program on the Sunshine Coast, published an educational book and DVD, and become known as an organic gardening expert. She won awards, hung out with […]


Lyme disease and relapsing fever found in Australian patients


By Marie Brown Examination of one hundred blood samples from Australian patients suggests that many have been exposed to Lyme disease, tick-borne relapsing fever, or both. The results, which have not yet been published in a scientific journal, were described by IGeneX CEO and laboratory director, Dr Jyotsna Shah, in an interview with Marie Brown. […]


Death by psychiatry


THE MISTREATMENT OF BARBARA WAS A TRAGIC END TO HER LIFE By John Curnow and Francene Lee Taylor In 2018 The Australian Government announced that it would provide a grant of 3 million dollars for research into Tick Borne-Diseases (TBD). A million dollars of this has been allocated to Professor Richard Kanaan, a psychiatrist at […]


When ALS is actually Lyme


By Maree Kratzer Many patients of tick-borne illness face an uphill battle for recognition in Australia. Not only do they navigate the physical, emotional, financial and social implications of chronic illness; they also battle a lack of scientific knowledge and medical support that denies them a healthy future. Karen and Rene, a couple in their sixties, are one example […]