Lyme Resources & Support
When you begin to research Lyme disease, you quickly realise that there is a lot of information out there. And it’s not always consistent. That’s why we’ve collated a few of our favourite resources for you!
It is by no means an exhaustive list, but it’s a good place to start.
Lyme Disease Association of Australia
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Health care complaints
Unfortunately, it is not uncommon for Lyme patients to be refused medical care, told “it’s all in your head”, “we don’t have Lyme here” or even be subjected to ridicule. Find out about your health care rights (includes state-by-state list of complaint organisations).
Support & information groups
- LDAA’s Tuesday Lymie Lunch online (zoom) meetings led by LDAA CEO Sharon Whiteman + Lyme Connect private Facebook group – Australia-wide, all welcome
Facebook pages & groups
- TICNA Tick-borne Illness Community Network Australia Inc
- Tick-borne Diseases Australia
- Tick-borne Disease Awareness & Support Group Australia
- Tick-borne Diseases & Mould Toxicity in Australia
- Lyme Australia & Friends
- Queensland Tick-borne Diseases
- SA Lyme Team – TBD and Borrelia
- Lyme Disease Victoria
- Chrysalis Lyme and Chronic Illness Support, WA
- Perth and WA Lyme Support Network
- ME/CFS and Lyme Association, WA
- Conquering Chronic Illness
- NZ Lyme Education Awareness Foundation
- NZ Global NZ Lyme & Co-infections
- NZ Global NZ Lyme & Co-infections – Sufferers, Family, Friends Group
- Some practitioners have set up support groups for their patients, e.g. Lyme expert, author and naturopath Amina Eastham-Hillier, Sunshine Coast QLD
- There are MANY great Lyme/Tick-borne disease pages and groups on Facebook, not specific to Australia or New Zealand. There are several pages that specialise in a particular aspect of Lyme, for example a co-infection, or a particular kind of treatment/medication. E.g. Bartonella Babe, LIVE Bee Venom Therapy, Overcoming Psychiatric Lyme & Co-infections.
- You may also find help and support in Facebook groups/pages that focus on mould (mold) and biotoxin illnesses/CIRS, chronic illness, and/or illnesses such as chronic fatigue syndrome and fibromyalgia
Podcasts
- Tick Boot Camp
- Better Health Guy
- Lyme Dialogues
- Lyme Ninja Radio
- Looking at Lyme
- Ticktective
- Two Much Lyme
Books
Fred Diamond
- Love, Hope, Lyme: What Family Members, Partners and Friends Who Love a Chronic Lyme Survivor Need to Know
Dr Richard Horowitz
- Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease, 2013
- How Can I Get Better? An Action Plan for Treating Resistant Lyme and Chronic Disease, 2017
Dr Nicola Ducharme (McFadzean)
- Lyme Brain: The Impact of Lyme Disease on Your Brain, and How To Reclaim Your Smarts, 2016
- The Lyme Diet: Nutritional Strategies for Healing from Lyme Disease, 2010
- The Beginner’s Guide to Lyme Disease: Diagnosis and Treatment Made Simple, 2012 (with Dr Burrascano)
- Lyme Disease in Australia: Fundamentals of an Emerging Epidemic, 2012
Dr Neil Spector
- Gone in a Heartbeat: A Physician’s Search for True Healing, 2015
Daniel A Kinderlehrer
- Recovery from Lyme Disease: The Integrative Medicine Guide to Diagnosing and Treating Tick-Borne Illness, 2021
Stephen H Buhner
- Healing Lyme: Natural Healing of Lyme Borreliosis and the Coinfections Chlamydia and Spotted Fever Rickettsiosis, 2015
- Natural Treatments for Lyme Coinfections: Anaplasma, Babesia, and Ehrlichia, 2015
- Healing Lyme Disease Coinfections: Complementary and Holistic Treatments for Bartonella and Mycoplasma, 2013
Dr William Rawls
- Unlocking Lyme: Myths, Truths, and Practical Solutions for Chronic Lyme Disease, 2017
Neil Nathan MD
- Toxic: Heal Your Body from Mold Toxicity, Lyme Disease, Multiple Chemical Sensitivities, and Chronic Environmental Illness, 2018
Dr Connie Strasheim
- New Paradigms in Lyme Disease Treatment: 10 Top Doctors Reveal Healing Strategies That Work, 2016 (with Steven Harris)
Bryan Rosner
- Lyme Disease Supercharge: The Revolutionary Approach to Getting Better When All Else Fails, 2019 (with Daniel Cagua-Koo MD)
- Freedom from Lyme Disease: New Treatments for a Complete Recovery, 2014
- The Top 10 Lyme Disease Treatments: Defeat Lyme Disease with the Best of Conventional and Alternative Medicine, 2007 (Rosner et al)
David Kent
- The Lyme book for family, friends, and caregivers: A primer for those diagnosed with Borreliosis and co-infections, 2018
Amina Eastham-Hillier (Au)
- Lyme Natural: A Handbook for Naturopaths, General Practitioners and Patients, 2017
Dana Parish and Steven Phillips
- Chronic: The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again, 2020
Personal Stories
Juliet C Wilson (Au)
- But You Look Healthy! ($1 from each book sale is donated to the LDAA)
Leonie Shanahan (Au)
- Lyme disease Sucks: The trauma, the truth and the triumph ($1 from each book sale is donated to the LDAA)
Ross Douthat
- Deep Places: A Memoir of Chronic Illness and Discovery
Susan Pogorzelski
- The Last Letter: A Novel
Political
Mary Beth Pfeiffer
- Lyme: The First Epidemic of Climate Change, 2019
Julie Mellae (Au)
- Australian Lyme Crimes: The Global Disgrace, 2020
Kris Newby
- Bitten: The Secret History of Lyme Disease and Biological Weapons, 2020
Websites
Information
- International Lyme and Associated Diseases Society (ILADS)
- Lyme Australia: Recognition and Awareness (LARA)
- Karl McManus Foundation
- LymeDisease.org (US)
- CanLyme (Canada)
- Lyme Disease UK
- Lyme.Global (For patient rights)
- Miss Tick (Australia)
Lyme and Mould Advice and Treatment
- Biomed Publishing Group (Books on Lyme)
- Can Get Better (Dr Richard Horowitz)
- Dr Nicola DuCharme
- RestorMedicine (Dr Nicola’s clinic)
- Klinghardt Institute
- Dr Bill Rawls
- Mold Avoidance Diary with Bryan Rosner
- Toxic Mould Support Australia
- Better Health Guy
- Living Clean in a Dirty World
Ticks and prevention
Australian Government
- Department of Health – Debilitating Symptom Complexes Attributed to Ticks (DSCATT)
- Parliament of Australia: Senate Inquiry – Growing evidence of an emerging tick-borne disease that causes a Lyme-like illness for many Australian patients
Films
Courses
- Lyme-Ed For Practitioners/For Patients (Dr Nicola)
- ILADS Lyme Fundamentals
- Mold Illness Made Simple
Copyright Lyme Disease Association of Australia
Tuesday Lymie Lunches
Lyme Warrior Boxes
