Lyme patient stories
These amazing stories have been submitted by Lyme patients from all over Australia.
We’d love to hear from you. Submit your Lyme story here.
Words and images copyright Veronique Mead, Chronic Illness Trauma StudiesThis is Laila’s Chronic Lyme Story. I call her story a #Chrillog, which stands for “chronic illness weblogs,” in which we look at our journeys through a nervous system and trauma lens. Laila’s Chronic Lyme Story highlights the commonly overlooked yet ...
By Sue Sherratt Hi, everyone, my name is Sue Sherratt and I live in Sydney, Australia. Due to living with tick-borne disease for many years, I had long felt my life as I once knew it was over. I had resigned myself to spending the rest of my life in ...
By Janet F. Murray Having your dreams cut short due to an illness like Lyme or other tick bite infection is a painful experience for anyone. This pain is even more apparent when you don't know whether your dream is deferred or entirely out of the question. I speak for ...
Living in ‘Nature’s Masterpiece’, The Royal National Park south of Sydney, I had discovered the perfect location as a widowed mother to raise my baby boy into a man. Surrounded by the joy of birdsong, marsupials and an ocean vista, peace would blanket me and my child and sunshine and ...
Love, Hope, Lyme: What family members, partners, and friends who love a chronic Lyme survivor need to know If only every Lyme sufferer had a Fred Diamond in their life. If that was the case, we would all know at least one person who was interested in trying to truly ...
By an Anonymous 15 year old Australian Lyme Patient1. How would you feel if you were completely failed by your own health care system that should be helping you and keeping you safe, yet they do the complete opposite? This is exactly what has happened to roughly 2,000 Australians kids ...
"A clear pathway back to health, and proof that it works"When Canadian-born Aussie, Juliet Wilson finally found the root cause of a lengthy and debilitating health battle, then treated it with great success, she committed to sharing what she had learned with others. 'But You Look Healthy' is her gift ...
By Juliet C Wilson "Neurofeedback is one of my favourite therapies, and I’ve seen it work wonders for Lyme Brain. I have had patients go from only sleeping two hours per night to sleeping full nights after a few sessions of neurofeedback. Others, after years of not feeling creative due ...
By Andrea, Lyme patient I have been asked to write a short story about my Lyme journey for Lyme Awareness Month. I am not a writer by any means and find the task a little daunting but I knew I needed to tell my story and support the Australian Lyme ...
This is an open letter to all candidates in the upcoming Federal Election (2022). By Tanya Dupagne. Today I’d like to share a story that is very important to me: Once upon a time, there were thousands of patients who became incredibly sick with similar symptoms. For an average of ...
By Dee Gozdecka I remember that late spring morning in 2014, when I woke up with a sharp pain on the left side of my chest. It was unusual and I could not move, but after a while it eased, and I finally got out of bed and started my ...
By Dominic D Smith Groningen, Groningen, NetherlandsHorticulturist, Landscape Designer and Engineer, Education Ambassador, Mentor, PatientRepresentative. Infected: 1998Infected by: 3 ticks (Netherlands)Diagnosed: 2005Diagnosis: Active and positive: Borrelia burgdorferi, Borrelia miyamotoi, Rickettsia, Tick-borne Encephalitis virus, Anaplasma, Bartonella, Ehrlichia, Mycoplasma, Chlamydia, Parvo B19, Epstein-Barr virus and Borna virusMisdiagnoses: Stress, Psychological/psychiatric disordersCurrent state of ...