These amazing stories have been submitted by Lyme patients from all over Australia.
We’d love to hear from you. Submit your Lyme story here.

Living in ‘Nature’s Masterpiece’, The Royal National Park south of Sydney, I had discovered the perfect location as a widowed mother to raise my baby boy into a man. Surrounded by the joy of birdsong, marsupials and an ocean vista, peace would blanket me and my child and sunshine and ...
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Love, Hope, Lyme: What family members, partners, and friends who love a chronic Lyme survivor need to know If only every Lyme sufferer had a Fred Diamond in their life. If that was the case, we would all know at least one person who was interested in trying to truly ...
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By an Anonymous 15 year old Australian Lyme Patient1. How would you feel if you were completely failed by your own health care system that should be helping you and keeping you safe, yet they do the complete opposite? This is exactly what has happened to roughly 2,000 Australians kids ...
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By Juliet C Wilson "Neurofeedback is one of my favourite therapies, and I’ve seen it work wonders for Lyme Brain. I have had patients go from only sleeping two hours per night to sleeping full nights after a few sessions of neurofeedback. Others, after years of not feeling creative due ...
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By Andrea, Lyme patient I have been asked to write a short story about my Lyme journey for Lyme Awareness Month. I am not a writer by any means and find the task a little daunting but I knew I needed to tell my story and support the Australian Lyme ...
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This is an open letter to all candidates in the upcoming Federal Election (2022). By Tanya Dupagne. Today I’d like to share a story that is very important to me: Once upon a time, there were thousands of patients who became incredibly sick with similar symptoms. For an average of ...
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By Dee Gozdecka I remember that late spring morning in 2014, when I woke up with a sharp pain on the left side of my chest. It was unusual and I could not move, but after a while it eased, and I finally got out of bed and started my ...
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“It took me nearly 4 years to get my life back, only to lose it again in an instant” I contracted very severe neuroborreliosis after tick bites at Narrabeen in 2018, a week before my 30th birthday. I couldn’t see, stand or swallow and was having seizures every day. After ...
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During her years in the service of New South Wales National Parks, Natalie Young was often bitten by ticks. For years, this was no big deal. She lived a healthy lifestyle, surfing regularly on top of her active, outdoor, dream job as Field Officer Discovery Park Ranger. She had renovated ...
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After an arduous and soul-destroying battle with Lyme disease and related health issues, on Saturday 7 August 2021, courageous, kind and beautiful 19-year-old Daisy Long ended her life. Daisy received treatment for her illness at a Cyprus clinic several years ago, and even went on to study successfully at university ...
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Children as young as 2 have been denied urgent healthcare for a bacterial infection due to the Department of Health’s political stance on what has been described as ‘the silent pandemic’. Despite thousands of Australian patients having evidence of Borrelia burgdorferi infection, commonly known as ‘Lyme Disease’, they are unable ...
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Leonie Shanahan had made it. She had chased a long-held dream; and worked hard to make a name for herself in the horticulture industry. She pioneered the Edible School Gardens program on the Sunshine Coast, published an educational book and DVD, and become known as an organic gardening expert. She ...
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