These amazing stories have been submitted by Lyme patients from all over Australia.
We’d love to hear from you. Submit your Lyme story here.

This is an open letter to all candidates in the upcoming Federal Election (2022). By Tanya Dupagne. Today I’d like to share a story that is very important to me: Once upon a time, there were thousands of patients who became incredibly sick with similar symptoms. For an average of ...
By Dee Gozdecka I remember that late spring morning in 2014, when I woke up with a sharp pain on the left side of my chest. It was unusual and I could not move, but after a while it eased, and I finally got out of bed and started my ...
By Dominic D Smith Groningen, Groningen, NetherlandsHorticulturist, Landscape Designer and Engineer, Education Ambassador, Mentor, PatientRepresentative. Infected: 1998Infected by: 3 ticks (Netherlands)Diagnosed: 2005Diagnosis: Active and positive: Borrelia burgdorferi, Borrelia miyamotoi, Rickettsia, Tick-borne Encephalitis virus, Anaplasma, Bartonella, Ehrlichia, Mycoplasma, Chlamydia, Parvo B19, Epstein-Barr virus and Borna virusMisdiagnoses: Stress, Psychological/psychiatric disordersCurrent state of ...
“It took me nearly 4 years to get my life back, only to lose it again in an instant” I contracted very severe neuroborreliosis after tick bites at Narrabeen in 2018, a week before my 30th birthday. I couldn’t see, stand or swallow and was having seizures every day. After ...
During her years in the service of New South Wales National Parks, Natalie Young was often bitten by ticks. For years, this was no big deal. She lived a healthy lifestyle, surfing regularly on top of her active, outdoor, dream job as Field Officer Discovery Park Ranger. She had renovated ...
After an arduous and soul-destroying battle with Lyme disease and related health issues, on Saturday 7 August 2021, courageous, kind and beautiful 19-year-old Daisy Long ended her life. Daisy received treatment for her illness at a Cyprus clinic several years ago, and even went on to study successfully at university ...
Children as young as 2 have been denied urgent healthcare for a bacterial infection due to the Department of Health’s political stance on what has been described as ‘the silent pandemic’. Despite thousands of Australian patients having evidence of Borrelia burgdorferi infection, commonly known as ‘Lyme Disease’, they are unable ...
Leonie Shanahan had made it. She had chased a long-held dream; and worked hard to make a name for herself in the horticulture industry. She pioneered the Edible School Gardens program on the Sunshine Coast, published an educational book and DVD, and become known as an organic gardening expert. She ...
This is Kara Perrin.If her face looks kind-of familiar, it’s because she’s kind-of famous! Actor, model, dancer, journalist and media presenter, Kara has been featured on film, radio, television, and in ads and music videos across the country. Recently she landed the lead role in the award-winning Australian short film ...
THE MISTREATMENT OF BARBARA WAS A TRAGIC END TO HER LIFEBy John Curnow and Francene Lee Taylor In 2018 The Australian Government announced that it would provide a grant of 3 million dollars for research into Tick Borne-Diseases (TBD). A million dollars of this has been allocated to Professor Richard ...
By Maree Kratzer Many patients of tick-borne illness face an uphill battle for recognition in Australia. Not only do they navigate the physical, emotional, financial and social implications of chronic illness; they also battle a lack of scientific knowledge and medical support that denies them a healthy future. Karen and ...
A debilitating illness that has been slowly ensnaring the lives of many Australians in its clutches is on a worryingly gradual rise. Yet the Australian healthcare and medical industry are determined to refute the existence of Lyme in Australia. One of the recent victims of Chronic Lyme disease in Australia ...