Blog

Words and images copyright Veronique Mead, Chronic Illness Trauma StudiesThis is Laila’s Chronic Lyme Story. I call her story a #Chrillog, which stands for “chronic illness weblogs,” in which we look at our journeys through a nervous system and trauma lens. Laila’s Chronic Lyme Story highlights the commonly overlooked yet ...

By Lyn McLean, Director, EMR AustraliaWe know that electromagnetic fields (EMFs) can both damage the body and can repair it. But how can both be true? In a paper published recently online Dr Henry Lai and science journalist B Blake Levitt explain this apparent contradiction. The story begins with the ...

By Sue Sherratt Hi, everyone, my name is Sue Sherratt and I live in Sydney, Australia. Due to living with tick-borne disease for many years, I had long felt my life as I once knew it was over. I had resigned myself to spending the rest of my life in ...

By Janet F. Murray Having your dreams cut short due to an illness like Lyme or other tick bite infection is a painful experience for anyone. This pain is even more apparent when you don't know whether your dream is deferred or entirely out of the question. I speak for ...

Living in ‘Nature’s Masterpiece’, The Royal National Park south of Sydney, I had discovered the perfect location as a widowed mother to raise my baby boy into a man. Surrounded by the joy of birdsong, marsupials and an ocean vista, peace would blanket me and my child and sunshine and ...

Love, Hope, Lyme: What family members, partners, and friends who love a chronic Lyme survivor need to know If only every Lyme sufferer had a Fred Diamond in their life. If that was the case, we would all know at least one person who was interested in trying to truly ...

By an Anonymous 15 year old Australian Lyme Patient1. How would you feel if you were completely failed by your own health care system that should be helping you and keeping you safe, yet they do the complete opposite? This is exactly what has happened to roughly 2,000 Australians kids ...

"A clear pathway back to health, and proof that it works"When Canadian-born Aussie, Juliet Wilson finally found the root cause of a lengthy and debilitating health battle, then treated it with great success, she committed to sharing what she had learned with others. 'But You Look Healthy' is her gift ...

By Juliet C Wilson "Neurofeedback is one of my favourite therapies, and I’ve seen it work wonders for Lyme Brain. I have had patients go from only sleeping two hours per night to sleeping full nights after a few sessions of neurofeedback. Others, after years of not feeling creative due ...

By Andrea, Lyme patient I have been asked to write a short story about my Lyme journey for Lyme Awareness Month. I am not a writer by any means and find the task a little daunting but I knew I needed to tell my story and support the Australian Lyme ...

This is an open letter to all candidates in the upcoming Federal Election (2022). By Tanya Dupagne. Today I’d like to share a story that is very important to me: Once upon a time, there were thousands of patients who became incredibly sick with similar symptoms. For an average of ...

By Dee Gozdecka I remember that late spring morning in 2014, when I woke up with a sharp pain on the left side of my chest. It was unusual and I could not move, but after a while it eased, and I finally got out of bed and started my ...

By Dominic D Smith Groningen, Groningen, NetherlandsHorticulturist, Landscape Designer and Engineer, Education Ambassador, Mentor, PatientRepresentative. Infected: 1998Infected by: 3 ticks (Netherlands)Diagnosed: 2005Diagnosis: Active and positive: Borrelia burgdorferi, Borrelia miyamotoi, Rickettsia, Tick-borne Encephalitis virus, Anaplasma, Bartonella, Ehrlichia, Mycoplasma, Chlamydia, Parvo B19, Epstein-Barr virus and Borna virusMisdiagnoses: Stress, Psychological/psychiatric disordersCurrent state of ...

LDAA Patron Dr Richard Horowitz calls out academic bias in new Lyme paper "Risk of post-treatment Lyme disease in patients with ideally-treated early Lyme disease: A prospective cohort study" was just published in the International Journal of Infectious Diseases. It regurgitates the same old assumptions that have held research back ...

“It took me nearly 4 years to get my life back, only to lose it again in an instant” I contracted very severe neuroborreliosis after tick bites at Narrabeen in 2018, a week before my 30th birthday. I couldn’t see, stand or swallow and was having seizures every day. After ...

During her years in the service of New South Wales National Parks, Natalie Young was often bitten by ticks. For years, this was no big deal. She lived a healthy lifestyle, surfing regularly on top of her active, outdoor, dream job as Field Officer Discovery Park Ranger. She had renovated ...

On the day his wife announced she was pregnant with their third child, Ross Douthat found a swelling on his neck, six inches down from his left ear. Ross and Abby were in the prime of their lives, a happy couple with established careers and a couple of kids. And ...

After an arduous and soul-destroying battle with Lyme disease and related health issues, on Saturday 7 August 2021, courageous, kind and beautiful 19-year-old Daisy Long ended her life. Daisy received treatment for her illness at a Cyprus clinic several years ago, and even went on to study successfully at university ...

Children as young as 2 have been denied urgent healthcare for a bacterial infection due to the Department of Health’s political stance on what has been described as ‘the silent pandemic’. Despite thousands of Australian patients having evidence of Borrelia burgdorferi infection, commonly known as ‘Lyme Disease’, they are unable ...