Welcome to the Lyme Disease Association of Australia blog!
Here you’ll find Lyme news, patient stories, book reviews, science and research and so much more.

Simply scroll through the posts below, or use the search function to find subject matter that most interests you.

By Andrea, Lyme patient I have been asked to write a short story about my Lyme journey for Lyme Awareness Month. I am not a writer by any means and find the task a little daunting but I knew I needed to tell my story and support the Australian Lyme ...
Read More
"A clear pathway back to health, and proof that it works"When Canadian-born Aussie, Juliet Wilson finally found the root cause of a lengthy and debilitating health battle, then treated it with great success, she committed to sharing what she had learned with others. 'But You Look Healthy' is her gift ...
Read More
By Juliet C Wilson "Neurofeedback is one of my favourite therapies, and I’ve seen it work wonders for Lyme Brain. I have had patients go from only sleeping two hours per night to sleeping full nights after a few sessions of neurofeedback. Others, after years of not feeling creative due ...
Read More
This is an open letter to all candidates in the upcoming Federal Election (2022). By Tanya Dupagne. Today I’d like to share a story that is very important to me: Once upon a time, there were thousands of patients who became incredibly sick with similar symptoms. For an average of ...
Read More
By Dee Gozdecka I remember that late spring morning in 2014, when I woke up with a sharp pain on the left side of my chest. It was unusual and I could not move, but after a while it eased, and I finally got out of bed and started my ...
Read More
By Dominic D Smith Groningen, Groningen, NetherlandsHorticulturist, Landscape Designer and Engineer, Education Ambassador, Mentor, PatientRepresentative. Infected: 1998Infected by: 3 ticks (Netherlands)Diagnosed: 2005Diagnosis: Active and positive: Borrelia burgdorferi, Borrelia miyamotoi, Rickettsia, Tick-borne Encephalitis virus, Anaplasma, Bartonella, Ehrlichia, Mycoplasma, Chlamydia, Parvo B19, Epstein-Barr virus and Borna virusMisdiagnoses: Stress, Psychological/psychiatric disordersCurrent state of ...
Read More
LDAA Patron Dr Richard Horowitz calls out academic bias in new Lyme paper "Risk of post-treatment Lyme disease in patients with ideally-treated early Lyme disease: A prospective cohort study" was just published in the International Journal of Infectious Diseases. It regurgitates the same old assumptions that have held research back ...
Read More
“It took me nearly 4 years to get my life back, only to lose it again in an instant” I contracted very severe neuroborreliosis after tick bites at Narrabeen in 2018, a week before my 30th birthday. I couldn’t see, stand or swallow and was having seizures every day. After ...
Read More
During her years in the service of New South Wales National Parks, Natalie Young was often bitten by ticks. For years, this was no big deal. She lived a healthy lifestyle, surfing regularly on top of her active, outdoor, dream job as Field Officer Discovery Park Ranger. She had renovated ...
Read More
On the day his wife announced she was pregnant with their third child, Ross Douthat found a swelling on his neck, six inches down from his left ear. Ross and Abby were in the prime of their lives, a happy couple with established careers and a couple of kids. And ...
Read More
After an arduous and soul-destroying battle with Lyme disease and related health issues, on Saturday 7 August 2021, courageous, kind and beautiful 19-year-old Daisy Long ended her life. Daisy received treatment for her illness at a Cyprus clinic several years ago, and even went on to study successfully at university ...
Read More
Children as young as 2 have been denied urgent healthcare for a bacterial infection due to the Department of Health’s political stance on what has been described as ‘the silent pandemic’. Despite thousands of Australian patients having evidence of Borrelia burgdorferi infection, commonly known as ‘Lyme Disease’, they are unable ...
Read More
Leonie Shanahan had made it. She had chased a long-held dream; and worked hard to make a name for herself in the horticulture industry. She pioneered the Edible School Gardens program on the Sunshine Coast, published an educational book and DVD, and become known as an organic gardening expert. She ...
Read More
By Jacqui van Teulingen At the LivLyme Summit in Colorado we heard about the progression in laboratory testing for Lyme disease and Tick-borne Relapsing Fevers via Dr Jyotsna Shah, CEO and president of IGeneX. It was timely given the Infectious Disease Society of America’s (IDSA) journal has just acknowledged the ...
Read More
By Marie Brown Examination of one hundred blood samples from Australian patients suggests that many have been exposed to Lyme disease, tick-borne relapsing fever, or both. The results, which have not yet been published in a scientific journal, were described by IGeneX CEO and laboratory director, Dr Jyotsna Shah, in ...
Read More
This is Kara Perrin.If her face looks kind-of familiar, it’s because she’s kind-of famous! Actor, model, dancer, journalist and media presenter, Kara has been featured on film, radio, television, and in ads and music videos across the country. Recently she landed the lead role in the award-winning Australian short film ...
Read More
Book review by Dr John A Duley PhD LDAA Scientific Advisory Committee(Honorary Senior Fellow, School of Pharmacy, The University of Queensland) I was recently browsing in a bookshop, to fill in time, and saw a new book, ‘How The Brain Lost Its Mind’. A catchy, humorous title. It was subtitled ...
Read More
In response to a complaint filed by the Patient Centered Care Advocacy Group (PCCAG), the Infectious Diseases Society of America (IDSA) has removed the publication, Ten Facts You Should Know About Lyme Disease, from its website ...
Read More
THE MISTREATMENT OF BARBARA WAS A TRAGIC END TO HER LIFEBy John Curnow and Francene Lee Taylor In 2018 The Australian Government announced that it would provide a grant of 3 million dollars for research into Tick Borne-Diseases (TBD). A million dollars of this has been allocated to Professor Richard ...
Read More
By Maree Kratzer Many patients of tick-borne illness face an uphill battle for recognition in Australia. Not only do they navigate the physical, emotional, financial and social implications of chronic illness; they also battle a lack of scientific knowledge and medical support that denies them a healthy future. Karen and ...
Read More
 
Sorry to interrupt, but we'd love to stay in touch with youWe support Lyme patients and their loved ones. Don't miss news and updates - join the LDAA family by signing up to our mailing list!


No spam, ever! Easy unsubscribe anytime.