Clinical Advisory Committee on Lyme Disease (CACLD)
Nikki Coleman, LDAA Patient Representative
The Chief Medical Officer of Australia’s Clinical Advisory Committee on Lyme Disease met this afternoon – here is a summary of that meeting:
– Summary of the Clinical Advisory Committee on Lyme disease meeting 28 May, 2013, from Nikki Coleman, patient representative
– terms of reference 1 & 4 will be changed (as requested by the LDAA) to read
1 – “whether there is evidence of Borrelia spp causing illness in humans in Australia “ to read “the extent to which there is evidence of Borrelia spp causing illness in humans in Australia;” – previously it read “whether there is evidence of Borrelia spp causing illness in humans in Australia” – this is much more respectful for the tens of thousands of Lyme sufferers around Australia).
4 – the most appropriate ways to disseminate information to health professionals and the general public on borreliosis/Lyme disease (previously it read only borreliosis)
Finding the organism that causes Lyme disease in Australia is the top priority for the CMO & the CACLD. With this in mind, a scoping study will be done to work out the best way to find the organism, and how to fund this research. The next step (after the scoping study) will be the actual research to find the causative agent that is causing Lyme disease in Australia.
This process is slower than we like (the committee and the CMO are very aware of the current suffering of Lyme patients in Australia), but it is important to get this right, given that previous attempts around Lyme disease in the 1990’s have been so disasterous for Lyme patients since that time.
Read full notes here: 20130528CACLDMtg2NikkiNotes